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Published: Aug 07, 2008 09:21 AM
Modified: Aug 07, 2008 09:21 AM

Golf Tournament helps children
 
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On Aug. 11, Hope’s Hope will host its third annual Hope’s Hope Golf Classic. The Golf Classic will be held at Prestonwood Country Club in Cary. This will be our premier fundraiser for the year.

Registration will begin at 8:30 a.m. A silent auction will begin at 9:30 a.m. Tee-off time will be at 10 a.m. An Hors d’hoeuvres Award Reception will follow tournament play, complete with trophies for 1st, 2nd & 3rd place, door prizes, and a grand prize raffle. Many course contests are available, including a $5,000 Putting Contest, a $10,000 Hole-in-One contest, as well as longest drive and closest-to-the-pin challenges. Registration is open online at www.hopes-hope.org. Cost is $500 for a foursome or $150 for individuals. Tournament will be handicapped so all level of players are welcome! Many sponsorship opportunities are available too – check them out online. We hope you will join us for a day of fun! All proceeds will benefit the mission of Hope’s Hope, and a portion of your registration is tax deductible.

Hope's Hope was established in February 2005 by a dedicated group of volunteers committed to providing assistance to families who have children battling a class of rare, terminal neurodegenerative disorders. The inspiration for Hope's Hope was 6-year-old Hope Johnston of Apex who was born with the rare genetic disorder INAD (Infantile Neuroaxonal Dystrophy). Unfortunately Hope passed away Wednesday, July 30. She has gone to be with our Father in heaven. We will continue to keep Hope and her family in our thoughts and prayers.

The purpose of Hope's Hope is to raise awareness of the debilitating and progressive neurodegenerative diseases INAD (Infantile Neuroaxonal Dystrophy), PKAN (Pantothenate Kinase Associated Neurodegeneration), and other NBIA (Neurodegeneration with Brain Iron Accumulation) disorders of childhood, and to provide supportive services and financial assistance to families of children afflicted with these diseases.

Through contributions, fundraisers, advocacy, and education, Hope's Hope strives to maintain a family's quality of life and raise awareness about these diseases that we hope will lead to better care, disease treatment, further research, and, ultimately, a cure. Hope's "hope" is to eradicate INAD, PKAN and all other NBIA disorders.

Please visit our Web site at hopes-hope.org for more information or contact Cheri McDonald, president, at 819-2736 or Shelda Northcutt, director and Golf Classic chairman, at 815-5215.

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